Hi everyone, you know when the blog is quiet things are happening! Unfortunately Oscar was admitted to hospital unexpectedly once again on Tuesday, he was just so poorly but no one could put a finger on what was wrong. We thought that it was a combination of the effects of chemo (he never really recovered from session 7, then session 8 just hit him so hard), and the fact he hasn't been eating or drinking properly for quite a few weeks now.
However it was confirmed last night that he has a blood infection, on top of the fact his salts (potassium, magnesium and sodium) in his blood are very messed up. So 3 very strong IV antibiotics now running, several bags of fluid with added salts, TPN feed (nutrition straight into his veins), and a blood and 2 platelet transfusions. Poor little man hasn't sat up unaided in about a week, but even if he wanted to he couldn't, being hooked up to all those drips! Since this evening, he is now hooked up to a heart (ECG) monitor as well, to make sure the very low potassium level in his blood isn't causing his heart any harm. It was mentioned that he may need to be moved to intensive care if he needs any further monitoring, but for now we are being well looked after by Oscar's amazing care team in the haematology ward.
Oscar is spending his days lying down watching tv and DVDs, or else just staring into space. We just CAN'T WAIT to see him up and about getting up to mischief again! Thanks for all your support on Twitter @Wee_Oscar. Please keep everything crossed that Oscar will be well enough to go through all his tests next week (bone marrow, full body CT scan, MIBG scans, audiology, GFR kidney function test), after which we hope to get the good news that he is ready to move to our next phase which is stem cell harvest and surgery. C'mon Oscar, you can do it!!! We love you and are SOO proud of you! XXX
Our precious little boy, Oscar, was diagnosed with high risk neuroblastoma (an extremely rare and aggressive childhood cancer) on 30th November 2011. After a long and tough battle he was finally given the all clear in April 2013 but sadly it returned in August 2013. This blog is to update our many friends and family members who are supporting us and Oscar in this battle.
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We are all so proud of you and your fantastic mummy and daddy. xxxxxxxxxxxxxxx All your big cousins. xxxxx
ReplyDeleteHe's a real fighter. he'll amaze you and be ready for his tests. You're all in our thoughts and prayers.
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Lara, Fra & kids
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We are always in awe of how brave Oscar is being – always thinking of you. Everything crossed that tests go well next week.Let us know if you need anything Sarah & Aidan xx
ReplyDeleteThinking of you all. Oscar is such a brave wee man. Always in our thoughts and prayers. Take Care. Martina (Miskelly)
ReplyDeleteMy thoughts and prayers are with you. Hope all goes well next week. Nan (Caldwell) xoxo
ReplyDeleteWe're both thinking of you all and have everything crossed that you'll hear some good news soon. Its amazing how brave he's been during this incredibly tough time. Hope all goes well, emer and steve smartt x
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