We knew it was going to be bad, but had to wait until it happened to know
just HOW bad. And we certainly know now. Oscar is suffering terribly - I
actually want to spare you some of the more gruesome details, you just
shouldn't hear about kids experiencing stuff like this. It is still all within
the limits of "normal" side effects for this type of treatment, which
is the one thing we have to be thankful for, but it is difficult to be thankful
for anything looking at the distress our poor wee man is in these days. You can see his deterioration in the pictures that follow...
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Frozen stem cells emerge from the container |
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Oscar receiving stem cell infusion |
Oscar received his stem cells on Monday 9th July afternoon, and was sick
that evening. Up until this he had been well, really well, full of fun and
cheeky smiles. Here he is doing the very important job of punching holes in paper for Valerie...
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"Mummy, I'm busy!" - when I tried to take this photo of him (Monday 9th AM) |
He received more stem cells on Tuesday morning, and got just a
little bit sicker...
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Tuesday 10th July |
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Thursday 12th July |
When we got up on Wednesday morning Oscar was like a completely different
boy. Feeling very poorly, lying around, not talking or eating. He was getting
codeine for his pain, paracetamol for his temperatures, anti-sickness
medications, several antibiotics and TPN (nutrition straight into his
bloodstream). Things went downhill until Friday, we had to move from codeine to
oral morphine for the pain he was in. You probably all know that chemo kills
"fast dividing cells" which targets the cancer, but other fast
dividing cells include your hair follicles, skin, and inside of your mouth and
tongue right down through your digestive tract to your bottom. So the inside of
Oscar's mouth has broken down, it is red raw, which goes right the way down
through his stomach to his bottom. His stomach is swollen with gas and mucous,
and he is having awful cramps, diarhoea and vomiting.
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Saturday 14th July |
Things hit a new low on Saturday - we had been removing the mucous etc from
his stomach using a syringe attached to his feeding tube (which was bad enough)
- but this turned to pure blood. He has mucositis, which is
"the
painful inflammation and ulceration of the mucous membranes lining the
digestive tract, usually as an adverse effect of chemotherapy". He is
drooling - thick mucous - which can only be compared to egg white. His insides
are so raw and broken down that they are bleeding, and we are having to remove
this blood from his stomach, while still administering liver medication on its
own straight in. I just cannot imagine the state of his little insides, never mind the PAIN our poor Oscar is experiencing. He spent most of Saturday crying
and staring at us with big wide frightened eyes - HORRENDOUS. Sunday was more
of the same - a total nightmare.
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Monday 16th July |
Today (Monday) we moved from oral morphine to a continuous slow infusion of
morphine, 24 hrs/day. I really hoped this would be the end of the significant
pain, but I don't think we are quite there yet. He still seems uncomfortable,
and his sleep is very restless. He seems agitated and is whimpering. He is starting to look quite swollen, with all the fluid he is retaining. Stephen
and I discuss the possibility of this being the worst day over, at the end of
every day. We hope each morning that we get up that we see signs of him turning
that corner. So come on stem cells, do your job and make tomorrow that day!
Stay strong wee Oscar. I'm ten times your age and I'm gonna be getting a stem-cell transplant later this year and I hope that I can be as brave as you.
ReplyDeleteSending you and your mummy and daddy and your wee sister lots of love, huge and smiles.
AilĂs Corey xxx
Get well soon wee man see your face every morning on my way to work and often think of you. Had a word with him upstairs and stem cell is gonna work you will turn the corner soon and be a happy pain free little boy again. XXXX
ReplyDeletewhat a champion. reading that makes you see how silly and insignificant life's "issues" can be.
ReplyDeleteYou're going to be one spoiled wee mucker when this is over kid.
Doc
Get well soon Oscar.My thoughts are with you and your family. All the best from the North Coast.
ReplyDeleteAll thinking of the wee man. Legend. Hopefully the pain and gain are directly proportional in this case.
ReplyDeletePlease God he'll turn a corner soon. My thoughts and prayers are with you all, Emmaxxxx
ReplyDeleteThink of what you, your mummy, your daddy and Isy are going through every day. Very humbling to read this - it makes you realise that the small things that we all get hung up about from day to day mean absolutely nothing at all.
ReplyDeleteGet well wee man, you've got the world on your side. May God help you beat this terrible disease. xx
I'm hoping as I write this that today is the turning point. God bless you all.
ReplyDeletePraying for all of you you at this difficult time God Bless xx
ReplyDeleteReading this is bringing tears to my eyes totally.i hope wee Oscar turns a corner and comes through..I wish you's all the best with this.
ReplyDeletePoor wee man shouldn't have to go through all this pain but I really hope he gets better..
Take care.xxx
Lisa
Hopefully tomorrow is a better day guys, thinking of you all- stay strong and keep smiling Oscar xxx
ReplyDeleteAidy and Cathy
Get well again soon Oscar you are an inspiration
ReplyDeletegod Bless you and all your family and friends
Kerr smiling wee man xxx
Jim in Glasgow