Monday, 2 September 2013

Relapse Treatment Begins...

I spent ages writing a full diary of exactly what is going on right now, but you know what, it was just too depressing so I deleted it all. 

The good news is that little Izzie started playgroup today, she was beaming from ear to ear, singing and shouting "mummy I'm SO excited!" on our way down.  And although we are totally devastated that Oscar's little P1 desk remains empty right now, we were still delighted to see him walk (with help) round to his little classroom on haematology ward last Thursday.  Very proud parents on both fronts.

As far as treatment goes, Oscar is enduring TVD chemo as the first line of attack on his relapsed neuroblastoma.  This is an extremely tough combination of 3 different chemo drugs, and so Oscar is suffering extremely tough side effects.  Most of our time will be spent in hospital.  We don't even know if the treatment is working yet, we are searching for positive signs every day.  He is still suffering symptoms of his disease such as extreme pain, and his morphine requirements are increasing every few days.  His hair has already started to fall out, which is upsetting him.  We had it cut short last week to try to make this phase less traumatic.

Things are very tough and Oscar is suffering quite a lot right now, however in true #TeamOscar style we are doing our best to gather all our strength to follow our little boys lead.  Oscar - be brave little soldier and surprise us once more. 

Thanks for all your lovely messages and offers of help, even if we can't always reply or our thoughts are elsewhere, none go unnoticed xxx

35 comments:

  1. All the best wee boy, stay stong! xx

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  2. Can't bare the thought of wee Oscar suffering this..unbearable! and my heart breaks for all of you-you've all endured so much-it's so unfair.
    Praying that Oscar responds to treatment and gets back into remission soon.....it would be a dream come true to see him in his wee school uniform.
    Love to you all
    xxxx

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  3. Heartbreaking to hear our little warrior is suffering right now, I pray to god that he gets ease soon and the treatment works. Your little man has shown so much courage, determination and strength i am totally in awe of him, never far from my thoughts or prayers

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  4. Go on Big Man and show them it is not wise to mess with Big Oscar you beat them already do so again. God Bless

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  5. Jeanette Morrison2 September 2013 at 23:04

    Sorry to hear he is in pain,you are such brave parents and of course the wee man himself.Please try and keep strong for him so he can see this it will be strength for him. Always thinking of ytou all.xx

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  6. Soo sad to see a loved one going through a terrible illness especially a child. I hope & pray he gets better soon. Thoughts & prayers with u all. Keep strong & get well soon wee man.xxxxx

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  7. I pray that Our Lady, who watched her own son suffer, will intercede on you and Oscar's behalf. God bless.

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  8. Wee darling, God Bless him xxx

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  9. Still lighting the candles and praying hard for you wee man.You can do it Oscar all our love to you and Izzy glad she is liking her new school hopefully you will do the same really soon xx

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  10. God bless wee man, in our thoughts and prayers, we all received our wrist bands and are supporting you all the way, from a family of blue noses xo

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  11. Always thinking of you guys. Stay strong and together. xo Steven, Laura, Kane and Jasmine.

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  12. Leona, Stephen, Oscar and Izzie you are always in our thoughts and prayers xx Ellie Louise Brown and family xx

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  13. Please god wee Oscar battles this once again, its so unfair that anyone has to suffer this pain let alone a kid, Oscar is a wee God in my eyes his strength & bravery is amazing xxx I'm so glad wee Izzy is liking her school :) I can only hope & pray that someday wee Oscar will be going to school one day xx sending all my love, hugs & kisses to you all, stay positive like yous always do for wee Oscar xx TEAM OSCAR :)

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  14. Must be heartbreaking watching your wee son suffer so much. He continues to be an inspiration to everyone. Please God he will be able to beat this once again. Thoughts and prayers always, Maeve and family x

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  15. still prayin and lighting my candles for you all. the strength u all have within u is outstanding. praying and hoping that all will come right. forever in our thoughts and prayers

    ann marie mcauley

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  17. Oscar is so adorable I can hardly stand it. Thinking of you over in California and praying for Oscar to have the speediest, healthiest recovery from this sucky cancer battle.

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  18. Hello from Arkansas, USA. I am a member of Love Bomb, and all of us want to wish Oscar and your family the very best in this battle. I wish him the speediest of recoveries and all of you the strength, courage, and stamina that you need to see him through!

    Sending love across the miles, warm hugs, and open hearts!

    Terry in Arkansas

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  19. Just dropping a Love Bomb. Good Luck, Thoughts and prayers.

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  20. So much light and love to you and yours!! Praying, and hoping, and believing for you!

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  21. Sending lots of prayers and love from Phoenix, Arizona, USA!

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  22. Sending thoughts and prayers that your adorable little man recovers quickly and fully. Also praying for strength for your beautiful family.

    - From a member of the Love Bomb Team in California, USA.

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  23. Miracles occur every day. Never doubt this. Sending you prayers and long distance hugs for your beautiful boy.
    From a member of the Love Bomb Team in Virginia, USA.

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  24. What an adorably precious little man. And such a trooper for being so young. I hope he's able to get the help and assistance he needs and that he beats it soundly this time around. My love and prayers, thoughts for you, Oscar, and the family. From Green Bay, Wisconsin.

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  25. Sending love and prayers your way! What sweet little kids you have.

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  26. Sending you prayers, encouragement, and love from Texas. Oscar is fortunate to have such a supportive and positive family. Stay strong, and go #TeamOscar!

    From a member of the Love Bomb Team at Baylor University

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  27. Sending all of the happy thoughts and encouragement I have to #TeamOscar!

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  28. So so terribly sorry that you had to go through this even once and are now going through it a second time. You have a beautiful family and I hope so much that your little boy will be well soon. Wishing you all strength and comfort.

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  29. I'm so so sorry you're going through this. Your little boy is just the biggest fighter! Sending you a giant barrel of hugs and prayers!

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  30. Lots of love & hugs send your way. Keep looking for those good signs, I'm sure you will find them :) Oscar is really an example of bravery!!! Kisses to your cute family.

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  31. Praying for you and admiring your strength as you endure this alongside Oscar!

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  32. You and your family are in my prayers! I'm praying that Oscar will be healed quickly and completely, and that you will find peace, strength, and love during this time.

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  33. sending prayers and well wishes for you. my heart goes out to oscar xxxxx

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