|Elmo, sent in by Oscar's cousins Chloe and Sophie|
|Favourite new game...fishing!|
The aim now is to get Oscar off all his IV medications, and eating/drinking again. One of his antibiotics stopped yesterday, another is to stop today. He is still getting IV paracetamol as he needs it, but those times are getting further apart. His morphine infusion was halved yesterday, and he didn't appear to be in much pain, so that's another big step forward. His little mouth is still looking very sore, and I think it will be difficult to convince him to eat or drink again, he suffered so much pain with it over the past few weeks. BUT another fantastic sign this morning - he started sucking his dodi in his sleep!!! I know he is too old for it, and if we weren't in this situation he definitely wouldn't have one, but it provides him with so much comfort during the tough times of treatment there is no way I'm taking it off him. He can have 1000 dodies if that's what it takes to get him through, even if the dentist does freak out at me! Up until this morning he was holding it against his cheek and in his neck while he went to sleep... wee pet.
So onwards and upwards once again - Oscar just never ceases to amaze us, and the staff in hospital. He is such a little battler, there is just no keeping him down. This fighting spirit is what is getting him through, and why he deserves more than anything to win this battle hands down. If you met him for the first time today you just would never imagine the hell he went through this past 2 weeks. He's just an average fun loving 3 year old who seems a little bit poorly. C'mon Oscar, keep going, you are our hero! And it won't be long until you see your little Izzie again, she misses you so badly and has big hugs waiting for you xxx
|Bathtime is fun!|
It is a shame this has to be said, but to the person who upset my sister by cruelly saying "There's a reason these treatments aren't available on the NHS" - no, you're wrong. There are several reasons. In our case these include: 1. cost 2. drug availability 3. access to these scarce drugs. The treatment Oscar needs was approved to begin within a clinical trial on the NHS in March 2010, but we're still waiting for that trial to open. And we won't let Oscar down for these reasons, which is why we've taken it upon ourselves to raise the money to pay for this treatment elsewhere if the trial still hasn't opened here by the time he needs it (approx 6 weeks from now).
Our NHS isn't perfect, but lucky you, you haven't found that out in the most difficult way possible. When it comes to resources, the NHS is by definition one for all and not all for one. So don't go making such senseless, harmful and hurtful comments without knowing all the facts. These are all in our appeal statement at JustGiving.com/OscarAppeal, but contact us directly and we will happily discuss it in detail with you. People like you and comments like these only make us more fired up in our quest to do absolutely everything we can and more, to give our son the chance to have a shot at life he deserves.